The North Carolina Council on Developmental Disabilities (NCCDD) wants to be a resource to share valuable information about the novel coronavirus, also known as COVID-19, to help people with intellectual and other developmental disabilities (I/DD) and their families stay safe and healthy.

For the latest news, information, webinars and resources from North Carolina, check the sidebar on the right:

IMMEDIATE ATTENTION! Peer to Peer Connections Online Meetings (flyer)

Meetings Every Monday and Thursday hosted by SARTAC: 1:00 pm east coast time. The meeting is for one hour. The focus is peer to peer connections. Self-advocates sharing information and supporting each other while staying home during the Coronavirus.

            Join Zoom Meeting https://zoom.us/j/324815633

            Dial 1 929 436 2866 Meeting ID: 324 815 633

• Check HERE often for updates: Self-Advocates Resource and Technical Assistance Center website

Toolkit that includes resources through NC for a variety of mental health needs: (Download pdf)
Created by the Division of Mental Health Developmental Disabilities and Substance Abuse Services in partnership with the NCDHHS Historically Marginalized Populations Behavioral Health Workgroup, this toolkit provides resources through the state of North Carolina for a variety of mental health needs, including resources for parents engaging in online-school, family-based needs, resources for those within the I/DD community and others.

COVID-19 Accessible Materials Microsite is Live!

The Georgia Tech Center for Inclusive Design and Innovation (CIDI), with funding from the CDC Foundation and technical assistance from CDC is adapting COVID-19 materials into accessible formats for people with disabilities. The project has created a microsite to house all of the materials which has now gone live. On the microsite, you can request embossed braille, download accessible Word Documents and PDFs, and register for upcoming webinars related to COVID-19 and people with disabilities. More accessible materials are coming soon.

You can access the microsite here: COVID-19 Accessible Resources Home | Center for Inclusive Design and Innovation (gatech.edu)

If you have any questions or would like more information about the COVID-19 Accessible Materials for People with Disabilities Project, please contact [email protected].

Covid-19 Self-Advocate Resources: Videos (English and Spanish)
* Episode 1: How to Stay Healthy
* Episode 2: What Should I Do If I Think I’m Sick?
* Episode 3: What I Should Do If I Get Sick
* Episode 4: What To Do If a Caregiver or a Family Member Gets Sick
* Episodio 1 – Cómo mantenerse saludable: https://youtu.be/ZeYXu9–FsQ
* Episodio 2 – Lo que debo hacer si creo que estoy enfermo: https://youtu.be/40iBc9qNx6w
* Episodio 3 – Lo que debo hacer si estoy enfermo: https://youtu.be/1giIp8QjJCo
* Episodio 4 – Lo que debo hacer si mi familiar o persona que me cuida se enferma: https://youtu.be/3RhvpRrLXok

Green Mountain Self-Advocates:

• Know Your Rights: People with Disabilities Can Have a Supporter in the Hospital during COVID-19
  https://www.youtube.com/watch?v=9y1rOWyf_XM&t=18s
• Stimulus Checks and Representative Payees: What You Need to Know
  https://www.youtube.com/watch?v=rmKU_3CbfN8

SARTAC Workshops for October
SAME time & SAME link each day, 1:00 ET, Noon CT, 11:00 MT, and 10:00 PT
Join the Zoom Meetings on the computer, tablet, or smartphone or call 1-929-436-2866 and the Meeting ID: 324 815 633

Topics of these 1 Hour Workshops on Zoom BY Self-Advocates from Across the Country:
October 22 - Funding for State Self-Advocacy Groups
October 26 - Supported Decision Making
October 29 - Autism Training for First Responders

COVID-19 Educational Social Story for Exceptional Children: Campbell Medicine Exceptional Camels Interest Group created an illustrated story to help children understand COVID-19 and how they can help stay well. Read the article. Watch the video.

NC DHHS: New Updates

• New COVID-19 Support Services Program: Connecting Residents to COVID-19 Isolation and Quarantine Support
• NEW Resources for Renters Facing Eviction in English and Spanish on the Assistance page and in the Individuals guidance
• Updated Spanish version of NCDHHS Interim Guidance for the Safe Application of Disinfectants (Spanish)
• Updated P-EBT FAQs in Spanish

School Guidance Updates

• NCDHHS Instructions on How to Adjust Cloth Face Coverings distributed to K-12 Students, Teachers and Staff  (English, Spanish)
• NEW Flyer to Promote Child Care Hotline for School-Age Children (English, Spanish)
• NEW NCDHHS Guidance for When Schools Reopen (English, Spanish)
• Updated Infection Control and PPE Guidance for K-12
• Updated Child Care Guidance

Read the Autistic Self Advocacy Network (ASAN)'s Year-Round ADA Informational Page - A Self-Advocate’s Guide to the Americans with Disabilities Act

Governor’s TaskForce COVID-19 Updates:

• 22 NEW community testing sites (10 CHAMP sites) added
• UPDATED Contact Tracing numbers are now available
• NEW VIDEO available on Vimeo in English and Spanish from DHHS COVID-19 Historically Marginalized Populations Workgroup added here and will be added to the Prevent and Protect toolkit
• UPDATED self-isolation information based on new CDC guidance on the testing, symptoms and treatment pages:
  • Has it been at least 10 days since your symptoms started?
  • Has it been 24 hours since you last had fever, without the use of fever-reducing medications?
  • Have your symptoms, such as coughing and shortness of breath, improved?
• UPDATED Symptom Screening Checklist in English, Spanish in Phase 2 guidance
• UPDATED What to Do If You Feel Sick Fact sheet in English and Spanish

NC DHHS: Update from State Board of Education – Department of Public Instruction’s Exceptional Children Division
Guidance on 2020-2021 Re-Opening Schools for Exceptional Children

COVID-19 Updates from NCDHHS Topics covered:

WATCH the new video featuring Dr. Tilson: “How to Properly Use a Cloth Face Covering” (Also available on the home page of www.nc.gov/covid19)

PRESS RELEASE NCDHHS Reports Highest One-Day Increase of COVID-19 Positive Tests

PRESS RELEASE NCDHHS to Send Community Health Workers to Underserved COVID-19 Hot Spots

NEW GUIDANCE in Long-Term Care: NCDHHS Guidance for Point-Prevalence Surveys (PPS) in Skilled Nursing Facilities

NEW TESTING SITES added to the Community Testing Events page (Note that this page, previously called “Pop-up Testing,” now has a new name.)

UPDATED “Requesting Specimen Collection Supplies” includes updated specimen collection link

UPDATED reports for Ongoing Outbreaks in Congregate Living and School Clusters are now available

UPDATED Prevent and Protect toolkit; the Know Your Ws social media is on this page, available in separate zip files for ease of access to the different images (more still to come)

UPDATED General Flow Chart: Hospital to Skilled Nursing Facility in Long-Term Care Guidance

UPDATED CLI Surveillance Report

UPDATED Schools Toolkit in Spanish

COVID-19 Updates from the Administration for Community Living (ACL) Topics covered:
• What do Older Adults and People with Disabilities Need to Know?
• For the Aging and Disability Networks
• Resources for Everyone
• American Sign Language
• En Español

Understanding Your Healthcare Rights NCCDD One-Pager (Updated links 6/11/2020)

NC DHHS Updated Guidance to Facilities on Outdoor Visitation

The latest from CDC: Yesterday, the Centers for Disease Control and Prevention updated its list of people at risk of severe COVID-19 illness to reflect the latest available evidence. Instead of a specific age threshold, CDC now warns that among adults, risk increases steadily as you age, and it’s not just those over the age of 65 who are at increased risk for severe illness. CDC also updated the list of underlying medical conditions that increase risk of severe illness and clarified the list of other conditions that might increase a person’s risk of severe illness to include additions such as asthma, high blood pressure, neurologic conditions such as dementia, cerebrovascular disease such as stroke, and pregnancy.

CMS also published FAQs on visitation considerations for nursing home

Building mental resilience: Across the country, people in helping professions are going above and beyond to serve others. The University of Southern California's School of Social Work has a blog post with advice on how social workers, first responders, public health professionals, and government officials can manage their own mental health while balancing their many roles and responsibilities.

LME-MCO Joint Communication Bulletin # J366 regarding Level of Care and Supporting Documentation During COVID-19 State of Emergency

NCDHHS Reports Highest Day of New Cases Since Pandemic Began

Friday, June 12 was North Carolina’s highest day of new cases (1,768) since the pandemic started. COVID-19 remains a serious threat to our state and the trends are concerning. We have the tools to respond to this crisis and slow the spread of the virus – but we all have to work together to make this happen. Practice the 3 Ws [covid19.ncdhhs.gov] - wear a cloth face covering, wait six feet apart and wash your hands frequently.

NCDHHS Announces $26 Million to Help Mitigate the Economic Disruption of COVID-19

NC Community Action Agencies (CAAs) have begun to receive flexible funds that can be used to help low-income individuals and families meet a variety of needs caused by the economic disruption of the COVID-19 pandemic. These funds are part of the federal Community Services Block Grant (CSBG) and can, among other allowable uses, help eligible residents facing eviction with unmet rent and utility expenses.  

To be eligible for CSBG-funded services, individuals and families must be at or below 200% of the federal poverty level. To apply for help, contact your local Community Action Agency. For additional information on the CSBG funding or contact information for the 33 Community Action Agencies in North Carolina, visit ncdhhs.gov/csbg-contacts [ncdhhs.gov]

NCDHHS Updates Guidance for Child Care Settings

The updated guidance is intended to help licensed/regulated child care facilities make informed decisions about COVID19 and minimize the risk of exposure to both the staff and the children in their care. Health and safety guidance for child care facilities during COVID-19 is outlined in this document, which is also available in Spanish.

NCDHHS Targets Additional Testing and Tracing Resources to 9 Counties

We are responding to COVID-19 on multiple fronts. Statewide we continue to build our testing and contact tracing infrastructure.  At the same time we are surging additional testing [covid19.ncdhhs.gov] and tracing [covid19.ncdhhs.gov] resources to targeted communities and populations that have been hardest hit by COVID-19. Our first round of partnerships is with a mix of several of our urban population centers as well as our rural communities, including Mecklenburg, Durham, Wake, Forsyth, Duplin, Lee, Johnston, and Alamance counties. 

Governor Cooper Proclaims Healthcare Heroes Day 2020

To recognize the daily heroic sacrifices made by healthcare professionals, particularly during the COVID-19 pandemic, Governor Cooper proclaimed June 15, 2020 Healthcare Heroes Day. In honor of our frontline heroes a special flag will be raised in front of the North Carolina State Capitol and will fly until July 15.

“I am so grateful to our healthcare heroes who are sacrificing so much to keep our communities healthy and save lives,” said Governor Cooper. “As this pandemic continues to grip our country, I am thankful for these North Carolinians who have answered the call to help others in need, and we can support them by doing our part in fighting this pandemic.”  Read the full Proclamation online.

NCDHHS Updates Guidance on Who should Be Tested

The North Carolina Department of Health and Human Services (NCDHHS) is releasing updated guidance for doctors and clinicians on who should be tested for COVID-19. 

NC Moves to Safer At Home Phase 2

• Executive Order 141

• NEW: Updated FAQ 

• NEW: Guidance on Bars

• What Phase 2 Means for NC

• Guidance

Flexibilities during COVID-19 – TBI Innovations Waiver Appendix K Update(s)

Preparing for Hospitalization During COVID-19 Pandemic: A Checklist for People with Disabilities Edition 2.0, 2020 NEW: You should do everything you can to stay out of a hospital, but if you have no choice, these tips help you prepare for what you may face.  It will NOT be business as usual.

ADA Compliance with Visitations in Healthcare Facilities:  Coronavirus Pandemic Guidance for Advocates Edition 1, 2020 NEW: Offers tips for advocating for visitations and working with healthcare facilities and state governments during current pandemic crisis about how to ensure healthcare facilities comply with Americans with Disabilities Act.

NCDHHS Provides One-Time Payment to Families with Children in Work First Cash Assistance Program

• Today, the North Carolina Department of Health and Human Services (NCDHHS) began distributing a one-time supplemental payment to families enrolled in the Work First Cash Assistance program with one or more children. These payments are intended to help vulnerable families during the economic disruption caused by the COVID-19 pandemic. 
• Read More

NCDHHS – Federal Stimulus Payments Issued Include Individuals with Disabilities

Federal stimulus payments are being issued and this includes payment to individuals with disabilities. Providers/licensees that also serve as Representative Payees for Social Security Administration (SSA) beneficiaries with disabilities should ensure payees understand that federal stimulus checks, known also as “Economic Impact Payments (EIP),” belong solely for the use of and by the beneficiary –not the payee.  We have posted guidance under the Individuals guidance page on our COVID page.

How to Prepare for a Video Appointment with Your Mental Health Clinician

COVID-19 Self Advocate - Link to Resources from California State Council on Developmental Disabilities

• Episode 1: How to Stay Healthy
• Episode 2: What Should I Do If I Think I’m Sick?
• Episode 3: What I Should Do If I Get Sick
• Episode 4: What To Do If a Caregiver or a Family Member Gets Sick
  

• Episodio 1 - Cómo mantenerse saludable
• Episodio 2 - Lo que debo hacer si creo que estoy enfermo:
• Episodio 3 - Lo que debo hacer si estoy enfermo
• Episodio 4 - Lo que debo hacer si mi familiar o persona que me cuida se enferma

NCCDD Future Planning Webinar: Recording Now Available Here

$2 million Emergency Grant will Support Behavioral Health Response to COVID-19

A $2 million grant from the Substance Abuse and Mental Health Services Administration (SAMHSA) will support NCDHHS’ efforts to address the growing needs of people with mental health issues and substance use disorder as it relates to the COVID-19 crisis, along with the mental health needs of the general public and health care workers who are on the front lines of this pandemic. Keep reading.

Telehealth Helping North Carolinians Access Care

Using telehealth, North Carolinians can receive services while avoiding the risk of exposure to COVID-19. Doctors and other clinicians across the state are using telehealth to deliver primary care and prenatal care; help patients manage asthma, diabetes, high blood pressure and other chronic conditions; and provide behavioral health counseling, physical therapy and more. All insurance companies in the state, including Medicaid and Medicare, are covering healthcare visits through telehealth. DHHS and NC Medicaid have developed a video and a flyer to help alleviate concerns and encourage people to talk with their doctors about using telehealth to get the care they need to stay healthy.

What you need to know about COVID-19 – Plain Language (Video from Autistic Self Advocacy Network)

Example of Telehealth In Action: (8 Minute Video on a Telehealth Appt for a Woman with DD)

If you have a Communication Disability (Deaf or Hard of Hearing) - Use this document from NC DHHS

NCCDD Position Statement Rationing Letter to Gov Cooper 4/23/20 (pdf) (doc)

NC Medicaid Receives Federal Approval of Flexibilities for HCBS (see details)

Providing Access through Sign Language & Text for Low Vision & Tactile Communicators During the Coronavirus Pandemic from the New York Deaf-Blind Collaborative

COVID-19 Resources for Deaf, Hard of Hearing and DeafBlind People

Things to Do During COVID-19

Disability Rights North Carolina – Accessing Special Education during COVID-19 Fact Sheet

Center for Dignity in Healthcare for People with Disabilities – Safeguard Against Disability Discrimination During COVID-19

NC-Interim Guidance for BHIDD In Home Service Providers from NC DHHS:  

• Read Guidance for Home and Community-Based Care Providers including family members (pdf)
• Read SSA Press Release on COVID-19 impact on benefits (4.3.2020)

Share Your Stories! 
Here are a few opportunities for self advocates to participate and share their stories about their experience during this Coronavirus pandemic. Please see the following:

• AUCD collecting stories from people with intellectual and developmental disabilities on COVID-19 effects
• NDRN needs your help to protect the rights of students with disabilities

New social distancing measures, long-term rules and streamlining the unemployment benefits process (4/9/20) Gov. Cooper Executive Order 131

Governor Cooper Signs Executive Order to Prohibit Utility Disconnections

On March 31st, Governer Cooper signed Executive Order #124: an additional step to help families by prohibiting utilities from disconnecting people who are unable to pay during this pandemic. The order applies to electric, gas, water and wastewater services for the next 60 days. The order directs utility companies to give residential customers at least six months to pay outstanding bills and prohibits them from collecting fees, penalties or interest for late payment. Read more here.

If you have an Intellectual/ Cognitive Disability and Need to Go to the Hospital:
Your caregiver may come with you in the ambulance or in the hospital.

Wondering if/how the stimulus checks will affect Medicaid eligibility?

Notwithstanding any other provision of law, any refund (or advance payment with respect to a refundable credit) made to any individual under this title shall not be taken into account as income, and shall not be taken into account as resources for a period of 12 months from receipt, for purposes of determining the eligibility of such individual (or any other individual) for benefits or assistance (or the amount or extent of benefits or assistance) under any Federal program or under any State or local program financed in whole or in part with Federal funds.

Following is news from the State Council on Developmental Disabilities

During difficult times, we rely on our community. The State Council on Developmental Disabilities has been making resources related to COVID-19 so that you can more easily stay close to your community while staying safe and healthy. We have listed some of those resources here, and remember to visit the SCDD website for the additional resources.

1) 10 Tips to Support Someone During Times of Change / 10 Consejos para Apoyar a Alguien en Tiempos de Cambio: One of the tips and ideas to support someone during times of frequent change is creating a picture album. We created one for you to check out. Click the photo below to see the bigger version.

2) SCDD Phone Tree Tips / Consejos de SCDD para una red de teléfonos: Not everyone has the internet or uses computers. Use these handy tips to call a friend and see if they are ok or need help. 

3) Ideas for Activities While Sheltering in Place / Ideas para Actividades Mientras Se Refugia en el Lugar: We have some creative ideas for activities to try while you are staying inside. When you do any of these activities, we would love to hear about them. Feel free to share your stories or photos with us by emailing us or tagging us on social media.

Plain Language Tips for Working with Support Staff during COVID-19

SARTAC (Self Advocacy Resource and Technical Assistance Center) released a new plain language booklet written by and for self-advocates. The Coronavirus or COVID-19 is changing our lives in many ways for a while. Self-advocates wrote these tips to help people with developmental disabilities deal with changes in how they are getting services. The suggestions are about working with support staff during COVID-19.

New Patient Fact Sheet Available – What to do if you feel sick

For people who think they might have COVID-19 and have mild symptoms, the Centers for Disease Control and Prevention now recommends they stay home and call their doctor if you need medical advice. Most people who get COVID-19 will have mild illness and recover at home. NCDHHS has developed a fact sheet to help North Carolinians know what to do if they are sick: Fact Sheet

Social Security & Coronavirus

Read The Collaborative’s Information on Tax Filing Requirements for the Stimulus

Helpful information for anyone receiving SSA benefits. Be aware of scams during the pandemic. The SSA will not suspend any payments due to COVID-19. Any call or email stating otherwise is untrustworthy. Stay updated with information directly from the US Social Security Administration.

Plain Language Information Sheet on COVID-19: English VersionSpanish Version

Text Only Plain Language Information Sheet on COVID-19: English VersionSpanish Version

Supporting Individuals with Autism in Uncertain Times Fact Sheet: English

• Opportunities for Self-Advocates to Participate in COVID 19 Response Efforts

NC DHHS COVID-19 Website

• NC Governor State Covid Action Plan Staying Ahead of the Curve
  

• NC DHHS Updates Guidance for Providers (April 20, 2020)
  

• NCDHHS Announces Hotline for Critical Workers Seeking Child Care Options

• NC 2-1-1 to Provide Assistance for COVID-19

• North Carolina State Briefings

• North Carolina Emergency Management CMIST Guidance Document

• Emergency Picture Communication Aid, English

• Emergency Picture Communication Aid, Spanish

Administration For Community Living COVID-19 Website

• The National Center on Birth Defects and Developmental Disabilities

• Developmental Disabilities Administration (DDA) - Latest news on COVID-19